The Adjusted Life

Sitting in the car after being told by my child’s school that she was struggling and needed her behavioural concerns assessed, I had two options – fall apart or get busy.

So, I got busy.

I knew that I should book into see my daughter’s GP but beyond that, there was no clear path on how to get the help we needed. There were so many emotions that I was trying to work through, all while trying to be the best advocate I could for my child.

You might be at the beginning of this journey, feeling sad and defeated but I am here to tell you that there is help available, but no one is going to hand it to you.

So, here is the path I took. I hope it’s clear and gives you the hope you’ll need to stay strong on your journey.

GP

Your GP is the gatekeeper to so many avenues for support. There are three things that we got from our GP which were invaluable in our journey.

Paediatric Referral

If you don’t already have a paediatrician, go and see your GP and get a referral. If you don’t have a specific paediatrician in mind, your GP might choose one from their database. These databases are often poorly maintained and rely heavily on word of mouth from other patients so come prepared if possible. The good thing is that your referral can be changed – often with a simple phone call to the GP’s receptionist.

GP Management Plan

This is a type of referral to manage a chronic medical condition including developmental or behavioural concerns. They are designed to support management goals and can be used for occupational therapy, speech therapy and psychology. These will cover most of the cost of 5 visits but there will be a gap.

Mental Health Care Plan

A mental health care plan from your GP will allow for up to 10 visits per year to a psychologist or social worker with access to rebates. Not all children will need or respond to psychological support, but they can be helpful in supporting some kids and helping understand some behaviours.

Finding a Paediatrician

Make a list of paediatric clinics in your area as most have a 6–12-month waitlist! This is soul-crushing when you feel the help you need is immediate but don’t be disheartened. Call clinics and ask to be on their waitlist – be sure to let them know that you are available for last minute appointments. My daughter was seen within 8 weeks because I was able to accept a late-cancellation appointment. Once your child is a patient of paediatrician, you will be guaranteed follow up appointments.

Early Childhood Approach

The early childhood approach is funding available through the NDIS for children younger than 6 with developmental delay (up to 9 with a disability). There is no need for a diagnosis, but your child will need to undergo an assessment to determine eligibility. If your child is approaching age 6, they will usually assess your child much sooner.

There truly is no right or wrong way to navigate accessing help for kids with support needs. If I could create the perfect how-to guide for families like mine, I would. What I can do is share my experiences and foster of a community that is supportive for carers and enables the path to be a little bit clearer.

If you have any questions or helpful tips please comment below, send me an email or reach out on my socials. Next time, we’ll discuss everything you need to know about assessments.